Founded in 1983, AA&MDSIF; is celebrating nearly 30 years of service as a recognized and respected leader in patient education, advocacy, and research. It is supported through individual contributions from grateful patients, families and friends, as well as foundations and corporations. How Does AA&MDSIF; Help? 1. Personalized Support from Patient Educators 2. Free Educational Materials 3. Online Learning Center 4. Peer Support Network 5. Regional Patient and Family Conferences 6. Newsletters and eInsider 7. Clinical Trials Information What Else Does AA&MDSIF; Do? 1. Funds medical research to find better treatments and cures for aplastic anemia, MDS, and PNH. 2. Advocates for increased federal funding of bone marrow failure disease research. 3. Promotes public awareness of bone marrow failure diseases. 4. Educates medical professionals on the most up-to-date information about these diseases, their diagnosis, and treatment.
The Aplastic Anemia & MDS International Foundation (AA&MDSIF;) is the world's leading nonprofit health organization dedicated to supporting patients and families living with aplastic anemia, myelodysplastic syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and related bone marrow failure diseases. AA&MDSIF; provides answers, support and hope to thousands of patients and their families around the world. We are a patient-focused, patient-centered organization, serving patients and families throughout the three phases of bone marrow failure diseases: • the life-changing phase of diagnosis • the life-threatening phase of treatment • the lifelong phase of living with a chronic disease The Aplastic Anemia & MDS International Foundation, Inc. serves over 4,000 patients in Texas annually; over 50 cases of bone marrow failure disease are diagnosed each day in the United States. AA&MDSIF; has maintained a four star rating from Charity Navigator for the past 10 years.